# Clinical Trials in Rare Diseases

- Dates: September 2026
- Location: InterContinental Boston, United States
- Organiser: Rare Trials Summit
- Industry: Pharma & Life Sciences

## About

The 2026 Rare Trials Summit is a US meeting focused on clinical development, regulatory, operations, evidence, and patient leadership in advancing rare disease therapies. It is intended for professionals involved in rare disease drug development.

## Official links

- [Official website](https://raretrialssummit.com/)
- [Registration](https://app.swapcard.com/login/event/2026-rare-trials-summit/registration)
- [Agenda](https://raretrialssummit.com/2026-agenda)

## Topics

- Medical & Pharma

## Speakers

- Annie Kennedy, Chief of Policy, Advocacy, and Patient Engagement, EveryLife Foundation for Rare Diseases
- Patricia Furlong, Parent Project Muscular Dystrophy
- Rachel Smith, VP, Rare and Genetic Disease, Parexel
- Angi Robinson, SVP, Specialty Areas Business Unit (Rare Disease, Pediatrics, CGT), Premier Research

## What people are saying

Official hashtag: #RareDiseases

- [2026 Rare Trials Summit](https://www.youtube.com/watch?v=TSSwLgao6eE)
- [2nd Annual Clinical Trials in Rare Diseases 2024 | Highlights](https://www.youtube.com/watch?v=COz06QpPv80)
  - Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

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Source: https://www.luminik.io/events/clinical-trials-in-rare-diseases-princeton-af4a4b02d077/