# World Orphan Drug Congress Europe 2026

- Dates: 27 October 2026 to 28 October 2026
- Location: RAI Amsterdam Convention Centre, Amsterdam, Netherlands
- Organiser: Terrapinn
- Industry: Pharma & Life Sciences
- Expected attendance: 2,973

## Official links

- [Official website](https://www.terrapinn.com/conference/world-orphan-drug-congress/index.stm)
- [Registration](https://www.terrapinn.com/conference/world-orphan-drug-congress/Attend.stm)
- [Agenda](https://www.terrapinn.com/conference/world-orphan-drug-congress/Agenda.stm)

## Topics

- Drug

## Speakers

- Alexander Natz, Secretary General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
- Clara van Karnebeek, Amsterdam UMC, Amsterdam NL
- Fabienne Bartoli, Inspector General, French National Authority for Health
- Stine Bosse
- Niklas Hedberg, Head Of Pharmacy, Tandvards och Lakemedelsformansverket
- Kaja Kantorska
- Jonathan Neal, Takeda
- Francesc Palau, Distinguished Investigator
- Violeta Stoyanova-Beninska
- Derek Ansel, Vice President, Therapeutic Strategy Lead, Rare Disease, Worldwide Clinical Trials
- Lara Bloom
- Peter Fassler, Director Market Access, Gilead Sciences
- Josie Godfrey, Vice President, Market Access & Pricing, Europe and International, Ascendis Pharma
- Ron Jortner, Founder & CEO, Aspire Biosciences
- Daria Julkowska, Head of Strategy & Partnerships in Health, ERDERA - INSERM
- Paolo Morgese, Vice President, Public Affairs, Europe, Alliance for Regenerative Medicine
- Josephine Mosset, Senior Policy Officer, Cancer Patients Europe
- Frauke Naumann-Winter, Head of Unit, BfArM
- Maurizio Scarpa, Director, Coordinating Center For Rare Diseases, MetabERN
- Lydia Shotton
- Wieteke Wouters, Programme Director, hollandbio
- Kwee Lan TAN, Head of team, Boehringer Ingelheim
- Veronica Lopez Gousset, DrPH candidate, Harvard T.H. Chan School of Public Health
- Viviana Giannuzzi, Senior Director, Head of Europe Global Regulatory & Scientific, Merck

## Sponsors and partners

- CENTOGENE GmbH
- Staatz Consulting
- Chiesi Global Rare Diseases
- ICON Clinical Research Ltd
- OXON EPIDEMIOLOGY
- PrimeVigilance
- RTI Health Solutions
- PANTHERx Rare
- Premier Research
- SGS Integrated CDMO Solutions
- subrosa Health & Capital
- Norgine
- Sciensus Pharma Services Limited
- York Health Economics Consortium
- Alchemist Consulting Ltd
- Genontech Digital Health Solutions Ltd
- Innvocept Global Solutions
- ERDERA
- FH Europe Foundation NGO
- RARE Revolution
- ODDIFACT
- Infirmacea Inc
- NIXI DESIGN FOR HEALTH SL
- Olavide Neuron STX (ONESTX)

## Where to stay

- **Die Port van Cleve**: 60 m from the venue, 176 Nieuwezijds Voorburgwal, Amsterdam, 1012SJ
  - [Hotel website](https://www.dieportvancleve.com/)
  - Phone: +31 20 714 2000
- **W Amsterdam**: 140 m from the venue, 175 Spuistraat, Amsterdam, 1012VN
  - [Hotel website](https://www.marriott.com/hotels/travel/amswh-w-amsterdam/)
  - Phone: +31 20 811 2500
- **Hotel Tamara**: 150 m from the venue, 144 Nieuwezijds Voorburgwal, Amsterdam, 1012SJ
  - [Hotel website](https://hotel-tamara.amsterdamhotele.com/en/)
- **The Times**: 160 m from the venue, 135-137 Herengracht, Amsterdam, 1015BG
  - [Hotel website](https://thetimeshotel.nl/nl/)
  - Phone: +31 20 330 6030
- **Dam Square Inn**: 190 m from the venue, 12-16 Gravenstraat, Amsterdam, 1012NM
  - [Hotel website](https://bestwesterndamsquareinn.com/)
  - Phone: +31 20 623 3716
- **´t Hotel**: 210 m from the venue, 18 Leliegracht, Amsterdam, 1015DE
  - [Hotel website](https://thotel.nl/)
  - Phone: +31 20 422 2741
- **Soho House**: 220 m from the venue, 210 Spuistraat, Amsterdam, 1012VT
  - [Hotel website](https://www.sohohouseamsterdam.com/)
  - Phone: +31 20 888 0300
- **Di-Ann City Centre Hotel**: 230 m from the venue, 2 stars, 27 Raadhuisstraat, Amsterdam, 1016DC
  - [Hotel website](https://www.di-ann-citycentre.com)
  - Phone: +31 20 774 3430

## What people are saying

Official hashtag: #worldorphandrugcongress

- [World Orphan Drug Congress Europe 2026 - Amsterdam, Netherlands](https://eurotravelo.com/explore/world-orphan-drug-congress-europe/)
  - World Orphan Drug Congress Europe 2026 in Amsterdam, Netherlands, is a leading healthcare and pharmaceutical event focused on rare disease treatments, orphan drug development, clinical research, and innovative solutions connecting industry
  - By eurotravelo.com
- [World Orphan Drug Congress Europe 2026 - IRDiRC](https://irdirc.org/event-list/world-orphan-drug-congress-europe-2026/)
  - The International Rare Diseases Research Consortium will be at the forefront of discussions at World Orphan Drug Congress Europe 2026, highlighting innovations in rare disease research, personalized therapies, and sustainable approaches to
  - By irdirc.org

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Source: https://www.luminik.io/events/world-orphan-drug-congress-amsterdam-20fc9cad3780/