# World Orphan Drug Congress Europe 2026 attendees

Speakers and sponsors named on public listings.

Public listings for World Orphan Drug Congress Europe 2026 name 39 speakers and 59 organizations. The organizations are 31 sponsors and 28 companies on stage.

Last checked 2026-09-17. 26 October 2026 to 28 October 2026, RAI Amsterdam Convention Centre, Amsterdam, Netherlands.

## Speakers (39)

- Alexander Natz, Secretary General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
- Clara van Karnebeek, Amsterdam UMC, Amsterdam NL
- Fabienne Bartoli, Inspector General, French National Authority for Health
- Stine Bosse
- Niklas Hedberg, Head Of Pharmacy, Tandvards och Lakemedelsformansverket
- Kaja Kantorska
- Jonathan Neal, Takeda
- Francesc Palau, Distinguished Investigator
- Violeta Stoyanova-Beninska
- Derek Ansel, Vice President, Therapeutic Strategy Lead, Rare Disease, Worldwide Clinical Trials
- Lara Bloom
- Peter Fassler, Director Market Access, Gilead Sciences
- Josie Godfrey, Vice President, Market Access & Pricing, Europe and International, Ascendis Pharma
- Ron Jortner, Founder & CEO, Aspire Biosciences
- Daria Julkowska, Head of Strategy & Partnerships in Health, ERDERA - INSERM
- Paolo Morgese, Vice President, Public Affairs, Europe, Alliance for Regenerative Medicine
- Josephine Mosset, Senior Policy Officer, Cancer Patients Europe
- Frauke Naumann-Winter, Head of Unit, BfArM
- Maurizio Scarpa, Director, Coordinating Center For Rare Diseases, MetabERN
- Lydia Shotton
- Kwee Lan TAN, Head of team, Boehringer Ingelheim
- Veronica Lopez Gousset, DrPH candidate, Harvard T.H. Chan School of Public Health
- Viviana Giannuzzi, Senior Director, Head of Europe Global Regulatory & Scientific, Merck
- Dariusz Adamczewski, Managing Director, Children’s Tumor Foundation Europe
- Anjan Aralihalli, President & Founder, Raya Therapeutic, Inc
- Annette Bakker
- Giorgia Crimi, Patient Adovacacy and engagement manager, Fondazione Telethon
- Magdalena Daccord
- Debbie Hellenbrand, Patient advocate and Professional Speaker, Pathways To Trust
- Anneliene Jonker
- James Levine, President, Foundation Ipsen
- Ruchi Sharma, Stemnovate Limited
- Claire Skentelbery, Director General, EuropaBio
- Rachel Smith, Vice President, Rare and Genetic Diseases, Parexel International LLC
- Ishaan Tewarie, EQT Life Sciences
- Sheela Upadhyaya, Life Science Advisor and Founder, Rarely Ordinary
- Miriam Wagner Long, Program lead, FSHD World Alliance
- Anouk Neven, Biostatistician
- Lorenzo Capretto, Head of HTA Strategy and Pricing, Global Rare Disease, Chiesi Farmaceutici SpA

## Sponsors and partners (31)

- CENTOGENE GmbH
- Staatz Consulting
- Chiesi Global Rare Diseases
- ICON Clinical Research Ltd
- OXON EPIDEMIOLOGY
- PrimeVigilance
- RTI Health Solutions
- PANTHERx Rare
- Premier Research
- SGS Integrated CDMO Solutions
- subrosa Health & Capital
- Norgine
- Sciensus Pharma Services Limited
- York Health Economics Consortium
- Alchemist Consulting Ltd
- Genontech Digital Health Solutions Ltd
- Innvocept Global Solutions
- ERDERA
- FH Europe Foundation NGO
- RARE Revolution
- ODDIFACT
- Infirmacea Inc
- NIXI DESIGN FOR HEALTH SL
- Olavide Neuron STX (ONESTX)
- OpalMedica
- Phormulate
- Transmineo
- Unboxed Psychology
- Unravel Biosciences
- Granzer Regulatory Consulting & Services GmbH
- Ikris Pharma Network

## Companies on stage (28)

- Amsterdam NL
- French National Authority for Health
- Tandvards och Lakemedelsformansverket
- Takeda
- Worldwide Clinical Trials
- Gilead Sciences
- Ascendis Pharma
- Aspire Biosciences
- ERDERA - INSERM
- Alliance for Regenerative Medicine
- Cancer Patients Europe
- BfArM
- MetabERN
- Boehringer Ingelheim
- Harvard T.H. Chan School of Public Health
- Merck
- Children’s Tumor Foundation Europe
- Raya Therapeutic, Inc
- Fondazione Telethon
- Pathways To Trust
- Foundation Ipsen
- Stemnovate Limited
- EuropaBio
- Parexel International LLC
- EQT Life Sciences
- Rarely Ordinary
- FSHD World Alliance
- Chiesi Farmaceutici SpA

## Frequently asked

### Who is listed for World Orphan Drug Congress Europe 2026?

Public listings for World Orphan Drug Congress Europe 2026 name 39 speakers and 59 organizations. The organizations are 31 sponsors and 28 companies on stage.

### Is there an attendee list for World Orphan Drug Congress Europe 2026?

This page shows the listed speakers and sponsors. Registration lists are held by the organizer. Request a target list to plan who to meet.

### Which speakers are listed for World Orphan Drug Congress Europe 2026?

39 speakers are named on public listings for World Orphan Drug Congress Europe 2026, including Alexander Natz (Secretary General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs); Clara van Karnebeek (Amsterdam UMC, Amsterdam NL); Fabienne Bartoli (Inspector General, French National Authority for Health).

### Which sponsors are listed for World Orphan Drug Congress Europe 2026?

31 organizations are named on the sponsor and partner listings for World Orphan Drug Congress Europe 2026, including CENTOGENE GmbH, Staatz Consulting, Chiesi Global Rare Diseases, ICON Clinical Research Ltd, OXON EPIDEMIOLOGY.

### When and where is World Orphan Drug Congress Europe 2026?

26 October 2026 to 28 October 2026 at RAI Amsterdam Convention Centre, Amsterdam, Netherlands.

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Source page: https://www.luminik.io/events/world-orphan-drug-congress-amsterdam-20fc9cad3780/attendees/
Event page: https://www.luminik.io/events/world-orphan-drug-congress-amsterdam-20fc9cad3780/