Pharma & Life Sciences
Clinical Trials in Rare Diseases
The 2026 Rare Trials Summit is a US meeting focused on clinical development, regulatory, operations, evidence, and patient leadership in advancing rare disease therapies. It is intended for professionals involved in rare disease drug development.
The essentials
Event details
- Dates
- 14 September 2026 to 16 September 2026
- Location
- InterContinental Boston, United States
- Organiser
- Rare Trials Summit
- Industry
- Pharma & Life Sciences
Public discussion
What people are saying
Official hashtag #RareDiseases
- Video2026 Rare Trials Summit
- Video2nd Annual Clinical Trials in Rare Diseases 2024 | Highlights
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Agenda themes
Topics covered
- Medical & Pharma
On stage
Speakers
- Annie KennedyChief of Policy, Advocacy, and Patient Engagement, EveryLife Foundation for Rare Diseases
- Patricia FurlongParent Project Muscular Dystrophy
- Rachel SmithVP, Rare and Genetic Disease, Parexel
- Angi RobinsonSVP, Specialty Areas Business Unit (Rare Disease, Pediatrics, CGT), Premier Research
Stay on it
Get the next edition
When Clinical Trials in Rare Diseases announces its next edition, or these dates change, we read it from the organiser's own site. One email when that happens, nothing else.
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