Pharma & Life Sciences
Clinical Trials in Rare Diseases
The 2026 Rare Trials Summit is a US meeting focused on clinical development, regulatory, operations, evidence, and patient leadership in advancing rare disease therapies. It is intended for professionals involved in rare disease drug development.
The essentials
Event details
- Dates
- September 2026
- Location
- InterContinental Boston, United States
- Organiser
- Rare Trials Summit
- Industry
- Pharma & Life Sciences
Public discussion
What people are saying
Official hashtag #RareDiseases
- Video2026 Rare Trials Summit
- Video2nd Annual Clinical Trials in Rare Diseases 2024 | Highlights
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Agenda themes
Topics covered
- Medical & Pharma
On stage
Speakers
- Annie Kennedy, Chief of Policy, Advocacy, and Patient Engagement, EveryLife Foundation for Rare Diseases
- Patricia Furlong, Parent Project Muscular Dystrophy
- Rachel Smith, VP, Rare and Genetic Disease, Parexel
- Angi Robinson, SVP, Specialty Areas Business Unit (Rare Disease, Pediatrics, CGT), Premier Research
Keep planning
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