Pharma & Life Sciences

World Orphan Drug Congress Europe 2026

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3 months until it opens.

The essentials

Event details

Dates
27 October 2026 to 28 October 2026
Location
RAI Amsterdam Convention Centre, Amsterdam, Netherlands
Organiser
Terrapinn
Expected attendance
2,973
Industry
Pharma & Life Sciences

Public discussion

What people are saying

Official hashtag #worldorphandrugcongress

  • PressWorld Orphan Drug Congress Europe 2026 - Amsterdam, Netherlands

    World Orphan Drug Congress Europe 2026 in Amsterdam, Netherlands, is a leading healthcare and pharmaceutical event focused on rare disease treatments, orphan drug development, clinical research, and innovative solutions connecting industry

    eurotravelo.com

  • PressWorld Orphan Drug Congress Europe 2026 - IRDiRC

    The International Rare Diseases Research Consortium will be at the forefront of discussions at World Orphan Drug Congress Europe 2026, highlighting innovations in rare disease research, personalized therapies, and sustainable approaches to

    irdirc.org

Agenda themes

Topics covered

  • Drug

On stage

Speakers

  • Alexander Natz, Secretary General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
  • Clara van Karnebeek, Amsterdam UMC, Amsterdam NL
  • Fabienne Bartoli, Inspector General, French National Authority for Health
  • Stine Bosse
  • Niklas Hedberg, Head Of Pharmacy, Tandvards och Lakemedelsformansverket
  • Kaja Kantorska
  • Jonathan Neal, Takeda
  • Francesc Palau, Distinguished Investigator
  • Violeta Stoyanova-Beninska
  • Derek Ansel, Vice President, Therapeutic Strategy Lead, Rare Disease, Worldwide Clinical Trials
  • Lara Bloom
  • Peter Fassler, Director Market Access, Gilead Sciences
  • Josie Godfrey, Vice President, Market Access & Pricing, Europe and International, Ascendis Pharma
  • Ron Jortner, Founder & CEO, Aspire Biosciences
  • Daria Julkowska, Head of Strategy & Partnerships in Health, ERDERA - INSERM
  • Paolo Morgese, Vice President, Public Affairs, Europe, Alliance for Regenerative Medicine
  • Josephine Mosset, Senior Policy Officer, Cancer Patients Europe
  • Frauke Naumann-Winter, Head of Unit, BfArM
  • Maurizio Scarpa, Director, Coordinating Center For Rare Diseases, MetabERN
  • Lydia Shotton
  • Wieteke Wouters, Programme Director, hollandbio
  • Kwee Lan TAN, Head of team, Boehringer Ingelheim
  • Veronica Lopez Gousset, DrPH candidate, Harvard T.H. Chan School of Public Health
  • Viviana Giannuzzi, Senior Director, Head of Europe Global Regulatory & Scientific, Merck

On the floor

Sponsors and partners

  • CENTOGENE GmbH
  • Staatz Consulting
  • Chiesi Global Rare Diseases
  • ICON Clinical Research Ltd
  • OXON EPIDEMIOLOGY
  • PrimeVigilance
  • RTI Health Solutions
  • PANTHERx Rare
  • Premier Research
  • SGS Integrated CDMO Solutions
  • subrosa Health & Capital
  • Norgine
  • Sciensus Pharma Services Limited
  • York Health Economics Consortium
  • Alchemist Consulting Ltd
  • Genontech Digital Health Solutions Ltd
  • Innvocept Global Solutions
  • ERDERA
  • FH Europe Foundation NGO
  • RARE Revolution
  • ODDIFACT
  • Infirmacea Inc
  • NIXI DESIGN FOR HEALTH SL
  • Olavide Neuron STX (ONESTX)

Logistics

Where to stay

Places to stay near the venue.

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