World Orphan Drug Congress Europe 2026 attendees

The essentials

Event details

Dates

26 October 2026 to 28 October 2026

Location

Amsterdam, Netherlands

Venue

RAI Amsterdam Convention Centre

Industry

Pharma & Life Sciences

Speakers listed

39

Companies listed

59

Sponsors listed

31

From the speaker listing

Speakers (39)

Names, roles and companies from published speaker listings.

• ANAlexander NatzSecretary General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
• CVClara van KarnebeekAmsterdam UMC, Amsterdam NL
• FBFabienne BartoliInspector General, French National Authority for Health
• SBStine Bosse
• NHNiklas HedbergHead Of Pharmacy, Tandvards och Lakemedelsformansverket
• KKKaja Kantorska
• JNJonathan NealTakeda
• FPFrancesc PalauDistinguished Investigator
• VSVioleta Stoyanova-Beninska
• DADerek AnselVice President, Therapeutic Strategy Lead, Rare Disease, Worldwide Clinical Trials
• LBLara Bloom
• PFPeter FasslerDirector Market Access, Gilead Sciences
• JGJosie GodfreyVice President, Market Access & Pricing, Europe and International, Ascendis Pharma
• RJRon JortnerFounder & CEO, Aspire Biosciences
• DJDaria JulkowskaHead of Strategy & Partnerships in Health, ERDERA - INSERM
• PMPaolo MorgeseVice President, Public Affairs, Europe, Alliance for Regenerative Medicine
• JMJosephine MossetSenior Policy Officer, Cancer Patients Europe
• FNFrauke Naumann-WinterHead of Unit, BfArM
• MSMaurizio ScarpaDirector, Coordinating Center For Rare Diseases, MetabERN
• LSLydia Shotton
• KLKwee Lan TANHead of team, Boehringer Ingelheim
• VLVeronica Lopez GoussetDrPH candidate, Harvard T.H. Chan School of Public Health
• VGViviana GiannuzziSenior Director, Head of Europe Global Regulatory & Scientific, Merck
• DADariusz AdamczewskiManaging Director, Children’s Tumor Foundation Europe
• AAAnjan AralihalliPresident & Founder, Raya Therapeutic, Inc
• ABAnnette Bakker
• GCGiorgia CrimiPatient Adovacacy and engagement manager, Fondazione Telethon
• MDMagdalena Daccord
• DHDebbie HellenbrandPatient advocate and Professional Speaker, Pathways To Trust
• AJAnneliene Jonker
• JLJames LevinePresident, Foundation Ipsen
• RSRuchi SharmaStemnovate Limited
• CSClaire SkentelberyDirector General, EuropaBio
• RSRachel SmithVice President, Rare and Genetic Diseases, Parexel International LLC
• ITIshaan TewarieEQT Life Sciences
• SUSheela UpadhyayaLife Science Advisor and Founder, Rarely Ordinary
• MWMiriam Wagner LongProgram lead, FSHD World Alliance
• ANAnouk NevenBiostatistician
• LCLorenzo CaprettoHead of HTA Strategy and Pricing, Global Rare Disease, Chiesi Farmaceutici SpA

Last checked 2026-09-17.

From the sponsor listing

Sponsors and partners (31)

Organizations listed as sponsors or partners.

• CENTOGENE GmbH
• Staatz Consulting
• Chiesi Global Rare Diseases
• ICON Clinical Research Ltd
• OXON EPIDEMIOLOGY
• PrimeVigilance
• RTI Health Solutions
• PANTHERx Rare
• Premier Research
• SGS Integrated CDMO Solutions
• subrosa Health & Capital
• Norgine
• Sciensus Pharma Services Limited
• York Health Economics Consortium
• Alchemist Consulting Ltd
• Genontech Digital Health Solutions Ltd
• Innvocept Global Solutions
• ERDERA
• FH Europe Foundation NGO
• RARE Revolution
• ODDIFACT
• Infirmacea Inc
• NIXI DESIGN FOR HEALTH SL
• Olavide Neuron STX (ONESTX)
• OpalMedica
• Phormulate
• Transmineo
• Unboxed Psychology
• Unravel Biosciences
• Granzer Regulatory Consulting & Services GmbH
• Ikris Pharma Network

Last checked 2026-09-17.

From the speaker listing

Companies on stage (28)

Companies represented by listed speakers.

• Amsterdam NL
• French National Authority for Health
• Tandvards och Lakemedelsformansverket
• Takeda
• Worldwide Clinical Trials
• Gilead Sciences
• Ascendis Pharma
• Aspire Biosciences
• ERDERA - INSERM
• Alliance for Regenerative Medicine
• Cancer Patients Europe
• BfArM
• MetabERN
• Boehringer Ingelheim
• Harvard T.H. Chan School of Public Health
• Merck
• Children’s Tumor Foundation Europe
• Raya Therapeutic, Inc
• Fondazione Telethon
• Pathways To Trust
• Foundation Ipsen
• Stemnovate Limited
• EuropaBio
• Parexel International LLC
• EQT Life Sciences
• Rarely Ordinary
• FSHD World Alliance
• Chiesi Farmaceutici SpA

Last checked 2026-09-17.

Agenda themes

Topics covered

• Drug

Common questions

Frequently asked

Who is listed for World Orphan Drug Congress Europe 2026?

Public listings for World Orphan Drug Congress Europe 2026 name 39 speakers and 59 organizations. The organizations are 31 sponsors and 28 companies on stage.

Is there an attendee list for World Orphan Drug Congress Europe 2026?

This page shows the listed speakers and sponsors. Registration lists are held by the organizer. Request a target list to plan who to meet.

Which speakers are listed for World Orphan Drug Congress Europe 2026?

39 speakers are named on public listings for World Orphan Drug Congress Europe 2026, including Alexander Natz (Secretary General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs); Clara van Karnebeek (Amsterdam UMC, Amsterdam NL); Fabienne Bartoli (Inspector General, French National Authority for Health).

Which sponsors are listed for World Orphan Drug Congress Europe 2026?

31 organizations are named on the sponsor and partner listings for World Orphan Drug Congress Europe 2026, including CENTOGENE GmbH, Staatz Consulting, Chiesi Global Rare Diseases, ICON Clinical Research Ltd, OXON EPIDEMIOLOGY.

When and where is World Orphan Drug Congress Europe 2026?

26 October 2026 to 28 October 2026 at RAI Amsterdam Convention Centre, Amsterdam, Netherlands.